I feel so ill
not ill like slang actually sick to my stomach
chronic illness tearing me apart with every passing moment
the chills hit me as the sweat pours down my battle worn body
I just wish I felt some camaraderie and that there were more patient friendly medical conventions around New York City.
My only wish is for a New York long term care center for rare disease
I have no doubt that with that they could diagnose me
with a team of doctors monitoring me daily
and teaching medical students to help pay for my stay
it shouldnt cost anything to be the topic of research
I just want my illness to help future patients be purged of this illness
to finally be cure for all that pain they’ve endured.
If you think about no long term setting exists for rare disease care
so I wonder if Mount Sinai might go there
if I start a petition and start talking to my local politicians asking them to have my back
this could save my life I don’t think anyone could ask more than that
this center isn’t just a selfish ploy for me to get better
it’s for the future of healthcare to make doctors collaborative by nature
and not so conceited, to listen to the patient as only they know their bodies
leave it to a psychologist to tell you if it’s all in their minds.
As for my case I have tons of proof
skin biopsies, positive tests, and all my health record at the ready to boot
I am so desperate for a clinical trial I spend my days looking for one I will qualify for
but it seems I’m too sick to be needed anymore
it seems right now I need my own Dr. House
someone who will take a hard case and work tirelessly to sort it out!