Hospitalized Again


Hey folks I thought I’d write a post today, yep the hospital is good for my creativity because I get woken up around 5am and it allows me time to get my bearings and still manage to get an article out in the mornings. Now that’s given I am in a good mental state as I am right now. When I have been in here for too long (7+ days) I tend to get cabin fever and stop writing. In this post I’ll address a few things:

  1. I’ve lost 40lbs or so in my weight loss challenge to myself. I anticipated losing the weight through rigorous physical therapy and aquatic therapy but that sure didn’t work out. In fact ever since we arrived home from our big Johns Hopkins visit and a pleasant stay at the Lord Baltimore Hotel (fancy) I began having gastrointestinal issues again but with a new symptom of diarrhea. I am very weak now it’s been 3 days since I’ve eaten anything. Yet I remain vomiting daily and having to go to the bathroom every 15 minutes only to wipe up blood and urine. It hurts most because I went in my own pants a few times! How aggravating is that? I mean it’s bad enough I have all these ailments and now I can’t even reach the bathroom? I sure hope this isn’t Crohn’s disease which is our main suspect at the moment. I plan to restart physical therapy soon enough and once my GI issues are sorted out i’ll begin aquatic therapy again. Right now I am in between 240-250lb and still quite heavy i’d like to lose 70lbs then start eating right again and work my way back to a muscle-bound body.
  2. Today I tweeted about listening to music when depressed and it’s very true it works to soothe depression so long as you know what to listen to. It’s all about knowing your mind and what mood you’re in. Sometimes I’ll listen to house/techno minaly wordless music when I write, but right now I’m listening to Eminem preparing my mind for the flurry of words that will hit me later and inspire a poem. Listening to fast paced clever lyrics even if they may be violent or a stretched truth is just like reading a fine book. Yesterday all I wanted to do was leave the hospital, this morning I finally got my headset and now that I’m not listening to the horrid sounds of a hospital ward I am in a much better place mentally. Perhaps I’ll start creating playlists for you all on Youtube and we can find out what most of us spoonies enjoy.
  3. I haven’t talked much about this but I have to slow down to only a few articles a week as you can see I’ve had a lot of trouble getting in any mood to write lately.It isn’t easy or too hard for that matter to come up with the words I want to say but some days I just don’t have the energy to make a video or put it to paper. I miss writing 2-3 articles a day but I know my limits so for the good of my health I am looking for others to collaborate with so that we will still have a good health blog just with more illnesses and far more points of view. If you read my blog and you’re interested whether experienced or not please contact me or comment here.

Alright folks that’s about all I have to say for now. I hope you like that I’ll be involving music more and more with health thanks to Oliver Sacks & his work on music and the brain. I’ll try to in turn post more often on my social media pages and here on the blog.


5 thoughts on “Hospitalized Again

  1. I’m very sorry about your GI issues as of late. I hope they can help sort them. I never realized how difficult those can be to diagnose until recently :/
    I’ve had an ongoing migraine from IH, a CSF imbalance in my brain. It is like Chiari. The head pain never stops. I really miss music and singing especially. Singing and playing instruments have always been a part of my life; it’s been a big adjustment, along with being bedbound. So I understand the cabin fever aspect for sure! Congratulations on the weight loss! I hope you continue reaching your goals in a healthy way and stay out of the hospital as much as possible.

  2. Sorry to hear you are back in hospital again Michael. I know we’ve discussed before, but if there’s ever anything I can do, anything I could write about for the site to help you out, give you a break, just let me know. Take care.

      • Remaining positive can be difficult at times I know. I would really love the opportunity to be able to share my story with your readership. I will write something and show it to you sometime soon and you can let me know what you think.

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