Today I had an excellent day despite a record setting 17 migraines the most I’ve ever had! The longest break in between them was 14 minutes according to my journal and I was forced to wear my Axon Optics FL-41 tinted sunglasses all day long. The reason today was excellent was because I achieved some of my chores. As you all know for spoonies it’s difficult to achieve such a thing, we can’t do much with so little energy and man today I pushed it but I really did excellent work!
I wrote an article earlier today with severely painful hands nearly in tears by the end of typing the tags for my blog to enter the article. It was hard but I achieved that, that’s something I do every day though. I also went to the rheumatologist who gave us mediocre news basically saying he doesn’t yet know whether my leg paralyzation will last for weeks or for life but I dealt with it emotionally very well so that was an achievement! Then I actually had the energy to go to the bank and get my card renewed because I didn’t know it had been disabled when Home Depot got hacked and hadn’t used the card in a while. I had a lot of trouble making it out of the car and into the bank but I made it and got my new card so that was yet another small achievement today. I then had the energy in my voice to talk to fellow advocate Teri Robert on the phone for almost an hour! We spoke about AHMA, the conference, how I could help out, and our lives in general it was so very enjoyable to hear from her. I also spoke to advocate Dawn Gibson over Facebook and we decided to try and collaborate on an upcoming project after talking for a while about our lives. Talking to those two women was very inspiring and really uplifting making me less depressed. I feel much more respect like we’re on more of an equal playing field and less like others look down upon me because I’m so new to the community. Lastly I managed to eat dinner, which is rare for me to eat an entire homemade meal, that was a blessing, and I truly enjoyed the home cooking so thank you Mom. All those small achievements add up and at the end of the day I can look at myself and say I achieved something. I’m glad to have done something because it’s not in my nature to be lazy.
I really enjoyed writing this it made me appreciate all the small things in life. Even though I can’t use my legs right now I still have so much more than most people I shouldn’t complain on a day like this. Look at all I achieved and all without the use of my silly legs and who knows hopefully they work again in 2-4 weeks! Thanks for reading and I hope you have a great night, sorry for the late post I know most of you will see this in the morning but I just had to write this tonight and post it whilst relevant!