A must read in my opinion and a situation many with a difficult disability reflect on at on time or another. To recognize that this happens and that we need to end hiring discrimination and the stigma surrounding those with chronic illness. The truth is many of us would like a real job, but it’s also a truth that many of us just cannot work we are 100% disabled.
Articles like this is why I am starting @VoiceofPatients we need a company that shows others how to make money whilst hiring those with chronic illness also known as #spoonies. Thank you for your time and I hope you check out the article I am typing one right now I just saw this and had to share it since it echoes so many of the stories I hear every week.
Sometimes I forget what it was like to have a steady liveable income. My new “normal” has become so ingrained, it’s easy to think that’s how it always was. Then I’ll wish I could buy a new sweater, for example, and I’ll remember there was a time when I really could buy a new sweater any time I wanted to.
This is one of those things that can be hard to understand until you live it. Politicians talk about cutting social security disability payments because they see the huge amount the program costs overall. They don’t consider what it’s like for an individual to have to actually live on the average payment of less than $1200 per month. (Full disclosure: my payments are above average. Of course, the cost of living in my city is also above average. I haven’t done the math to figure out if the ratios are…
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