Pain Strikes Like Lightning

Boom my mind goes blank as a fresh sheet of copy paper A Migraine attack has come to hit me again what a caper I hate taking triptans and DHE isn’t an option All because of my rare Churg Strauss Syndrome Vasculitis They make me swallow that toxin they call chemotherapy I guess that isn’t…

No Longer Being Able to Walk

  Today I got about 3 hours of sleep total due to pain and last night one of my worst fears came to light. I am now trying to talk but cannot I need to get in my wheelchair and essentially be picked up and dragged to the toilet whenever I need to go. This…

Falling so Often

I’ve been falling quite often lately I guess physically this past week or so I’ve been deteriorating. I was doing quite good, I made it to my fiancés birthday at her house and her family Christmas celebration to open gifts and be with my nieces who are beautiful by the way, such fun loving little…

Return of the Vasculitis Flare

  Today as I awoke from a sleeping in a solid 4 hours, yes that’s a good amount for me and feels quite restful, I found myself still wearing my Ohio State Buckeyes jersey from last night. I’d been watching the Sugar Bowl in which the Buckeyes played Alabama in the College Football Playoffs and…

Happy New Year 2015

Hello everyone and a Happy New Year, luckily my fiancé was over and I was able to give her the traditional kiss at midnight she deserves! She did so much for me in 2014 it was amazing she is my second best caregiver after my mother and mom is a registered nurse so that’s kind…